Amyotrophic lateral sclerosis: a guide for patients and families

Amyotrophic Lateral Sclerosis: An Overview

1. What Is Amyotrophic Lateral Sclerosis / Valerie A. Cwik

2. Clinical Features and Prognosis of ALS / Hiroshi Mitsumoto

3. Diagnosis of ALS / David A. Chad

4. Treating the Symptoms of ALS / Deborah Gelinas

Medical and Rehabilitative Management of ALS

5. Comprehensive Approach to Managing ALS / Rhoda R. Jacobs and Hiroshi Mitsumoto

6. Rehabilitation Issues / Lisa S. Krivickas

7. Physical Therapy / Vanina Dal Bello-Haas

8. Occupational Therapy / Patricia Casey

9. Wheelchair Selection / Catherine Balsdon Richer

10. Managing Communication and Swallowing Difficulties / Lisa Adams and Marta Kazandjian

11. Maintaining Optimum Nutrition / Carmen Blakely-Adams and Eileen M. Carr-Davis

12. Pulmonary Management / Robert Schilz

13. Life Support: Realities and Dilemmas / Mark B. Bromberg

14. Clinical Therapeutic Trials for ALS / Theodore L. Munsat

15. Design of Clinical Trials / Robert Sufit

16. ALS Patient Care Database / Robert G. Miller and F. A. Anderson / ALS C.A.R.E. Study Group

Living with the Reality of ALS

17. Cultural Effects on ALS / Ann Kuckelman Cobb

18. Caregiver's Experience / Ann Kuckelman Cobb, JoAnn B. Reckling and Karen J. Fernengel

19. Sharing the Experience of ALS: Patient and Family Support Groups / Marlene A. Ciechoski

20. Meditation and ALS / Gian Domenico Borasio

21. Living with ALS: Quality of Life Issues / Patricia L. Andres, Brenda J. Thornell and Linda T. Skerry

22. Psychological, Social, and Spiritual Factors / Evelyn R. McDonald

23. Quality of Life Issues and Treatment Goals / Maura L. Del Bene

Managing Advanced Disease and End-of-Life Issues

24. Legal and Ethical Issues / Susan J. Stagno

25. Financial Realities / Linda Boynton De Sepulveda and Michael C. Graves

26. Home Care Agencies / Dallas A. Forshew

27. Palliative Care: The Management of Advanced Disease / Mark J. Stillman

28. Hospice Care / Barbara Thompson and N. Michael Murphy

29. Mourning / N. Michael Murphy

Where You Can Turn to For Help

30. Role of the National Voluntary Health Organizations / Mary Lyons.